Privacy policy.
Our contact details
Name: Judith Hooks
E-mail: judith@firelily.org.uk
What is personal data
Any data that can identify you as a person or be used in conjunction with other information to identify you.
Why we wish to receive personal data and the type of personal data we collect
We receive personal information because we wish to encourage and give hope to young women journeying with cancer through the giving of a Fire Lily pamper box.
We will collect and hold the name and address/contact details of an individual (where this personal data is provided) who is journeying with cancer for the purposes of delivering a Fire Lily box to the individual. Once the Fire Lily box is delivered, the name and address/contact details of the individual will no longer be held or stored in any digital or written form by Fire Lily.
We will keep a record of the number of Fire Lily boxes that are delivered each year to individuals by means of a tally within age brackets (estimated age). Individuals will not be identified. This tally of information by age bracket will be kept for the purposes of promoting the Fire Lily message to potential sponsors.
We will collect and use email addresses of individuals where their consent has been provided to be included in a Fire Lily mailing list for the purposes of sharing points of prayer and devotions.
How we get personal data
Personal information will be disclosed to us (in digital form or by word of mouth) from individuals journeying with cancer or from third parties. This information will not be retained beyond the initial contact of delivering a Fire Lily box.
Where consent has been given by an individual to be part of a Fire Lily mailing list, the email addresses of individuals will be kept only for the purposes of sharing points of prayer and devotions.
How we store your personal information
We will only keep email addresses from individuals for the period of time that consent has been provided to be part of a Fire Lily mailing list for the purposes of sharing points of prayer and devotions. Once individuals give notice that they wish to unsubscribe from the mailing group, their email addresses will be deleted.
Any personal data given to us by digital or written form will be deleted once a Fire Lily box has been delivered to an individual.
Do we disclose your personal data to any individual or organisation outside Fire Lily?
We will not share the names and addresses of any individual with any other organisation or individual beyond Fire Lily.
Your data protection rights
Under the UK General Data Protection Regulation (UK GDPR), the lawful basis we rely on for processing this information is your consent. You are able to remove your consent at any time. You can do this by contacting Judith Hooks at judith@firelily.org.uk
Under data protection law, you have rights including:
Your right of access: You have the right to ask us for a copy of any personal information we hold relating to you.
Your right to rectification: You have the right to ask us to rectify personal information you think is inaccurate. You also have the right to ask us to complete information you think is incomplete.
Your right to erasure: You have the right to ask us to erase your personal information in certain circumstances.
Your right to restriction of processing: You have the right to ask us to restrict the processing of your personal information in certain circumstances.
Your right to object to processing: You have the the right to object to the processing of your personal information in certain circumstances.
Your right to data portability: You have the right to ask that we transfer the personal information you gave us to another organisation, or to you, in certain circumstances.
Questions / Concerns / How to complain
If you have any concerns about our use of your personal information, you can make a request to change your information or make a complaint to Judith Hooks at judith@firelily.org.uk. You are not required to pay any charge for exercising your rights. If you make a request, we have one month to respond to you. You can also complain to the Information Commissioner’s Office (ICO) if you are unhappy with how we have used your data.
The ICO’s address is: Information Commissioner’s Office, Wycliffe House, Water Lane, Wilmslow, Cheshire, SK9 5AF
ICO Helpline number: 0303 123 1113
ICO website: https://www.ico.org.uk